My new identity has been solidified over the last few years. I’m a special needs mom, a nurse mom and a caregiver to my two sons born with Spina Bifida. Our situation is uniquely complex and well known because it is rare to hear of two biological kids with this level of disability in a…
Faith
Warrier Moms- There Is A Price To War
Today I felt like I was in battle. I drove home from Phoenix Children’s Hospital with my shoulders slumped, bumped and bruised, with nothing to show but wounds. Since I have two sons that are medically fragile and complex, I spend a lot of time advocating for my kids. Advocating is really a sugar…
I Use My Child’s Disability to Get Attention
An adorable picture of my son warming my heart before an MRI today? Or an evil ploy to build my own ego? Up for debate. We have heard it all. Since opening up about our story over 3 years ago, there have been a plethora of responses. People tend to be fascinated by…
Dear Caleb- Fetal Surgery Day
Mommy and Caleb My dear sweet son Caleb, I am focusing right now on our team. Me and you, you and me. You have helped me along the way in making the hardest choice of my life; to risk so much for something so uncertain. You never made me make the decision alone. You remind…