My new identity has been solidified over the last few years. I’m a special needs mom, a nurse mom and a caregiver to my two sons born with Spina Bifida. Our situation is uniquely complex and well known because it is rare to hear of two biological kids with this level of disability in a…
Warrier Moms- There Is A Price To War
Today I felt like I was in battle. I drove home from Phoenix Children’s Hospital with my shoulders slumped, bumped and bruised, with nothing to show but wounds. Since I have two sons that are medically fragile and complex, I spend a lot of time advocating for my kids. Advocating is really a sugar…
I Use My Child’s Disability to Get Attention
An adorable picture of my son warming my heart before an MRI today? Or an evil ploy to build my own ego? Up for debate. We have heard it all. Since opening up about our story over 3 years ago, there have been a plethora of responses. People tend to be fascinated by…
One Dreamer’s Story
“You may say that I’m a dreamer, but I’m not the only one I hope someday you’ll join us, and the world will live as one” -John Lennon Our nurse, traveling with us to Flagstaff so we could take our son on his first trip. I have a medically fragile son that requires…