An adorable picture of my son warming my heart before an MRI today? Or an evil ploy to build my own ego? Up for debate. We have heard it all. Since opening up about our story over 3 years ago, there have been a plethora of responses. People tend to be fascinated by…
Trach Life
Would I Choose This Life?
Miles pondering the meaning of life, 18 months. When Bryce and I were engaged, he lived in Chicago and I lived in Arizona. It was long distance for 5 months as I planned the wedding and we relied on phone calls to keep in touch. He had just started his first big boy…
Anticipatory Grief
Miles, 16 Months Old When doctors placed Miles on hospice in January 2016, this term began getting tossed around a lot. Anticipatory Grief. I had already named it Pre-Grief. I still think mine is cuter. I think sometimes when they make something sound more formal, they think it feels less painful. They place children…
12 Things You CAN Say To A Special Needs Parent
Miles, 12 Months Old Lists are so cool right now. If an article isn’t in list form, it isn’t worth reading. Therefore I’m creating my own list. A list with a twist. I have read many posts lately on “The 10 Things You Should Never Say to A Special Needs Parent/ Someone Grieving/ Someone With…