I was just in the hospital with my 3 year old son. It was his 12th surgery. Between my medically complex sons, they have had 19 surgeries and dozens more hospitalizations in only a few short years. I would like to think I have learned how to compose my emotions so I can be allowed…
Spina Bifida
5 Reasons Why Moms Should Always Ask for Help
Of all the valuable lessons I have learned in the last 5 years of motherhood, learning to ask for help has been the most valuable…and for my husband, accepting it. It all began when I had a high risk pregnancy with my first son in Chicago. My morning sickness became so severe, I had to…
I Choose To Be A Sad Mom
My new identity has been solidified over the last few years. I’m a special needs mom, a nurse mom and a caregiver to my two sons born with Spina Bifida. Our situation is uniquely complex and well known because it is rare to hear of two biological kids with this level of disability in a…
Warrier Moms- There Is A Price To War
Today I felt like I was in battle. I drove home from Phoenix Children’s Hospital with my shoulders slumped, bumped and bruised, with nothing to show but wounds. Since I have two sons that are medically fragile and complex, I spend a lot of time advocating for my kids. Advocating is really a sugar…