I don’t know if this is a sad story or a happy story. Maybe it’s a sad one with a happy ending. I’m a mom so I am hecka sensitive to children getting hurt. I can lose my mind in hysterical grief if I read an article about a child being left in a hot…
Grief
I Choose To Be A Sad Mom
My new identity has been solidified over the last few years. I’m a special needs mom, a nurse mom and a caregiver to my two sons born with Spina Bifida. Our situation is uniquely complex and well known because it is rare to hear of two biological kids with this level of disability in a…
Warrier Moms- There Is A Price To War
Today I felt like I was in battle. I drove home from Phoenix Children’s Hospital with my shoulders slumped, bumped and bruised, with nothing to show but wounds. Since I have two sons that are medically fragile and complex, I spend a lot of time advocating for my kids. Advocating is really a sugar…
Be Careful What You Wish For – We Are Approved For Fetal Surgery!
Houston Food! The Lindens, New Family to Us First off, I have to say that we loved our week in Houston. We were required to spend a week at Children’s Memorial Hermann Hospital completing tests and dozens of consultations to decide if we qualify for fetal surgery. Houston was wonderful to us….