We had a very interesting visit with our Perinatologist last week. We really like her and she is the same doctor that gave us Miles’s Spina Bifida diagnosis. This conversation was obviously different and we mostly talked about how shocking it is that it’s all happening a second time. She said our chances…
Faith
Deja Vu- Another Son, Another Diagnosis
Caleb at 14 week ultrasound We recently found out we are having our third son, Caleb Drew. His namesake is in honor of my father, Drew Hastay. We planned for this baby, we prayed for him and we prepared for a year and a half. I did genetic testing, IV vitamin therapy, saw…
Anticipatory Grief
Miles, 16 Months Old When doctors placed Miles on hospice in January 2016, this term began getting tossed around a lot. Anticipatory Grief. I had already named it Pre-Grief. I still think mine is cuter. I think sometimes when they make something sound more formal, they think it feels less painful. They place children…
If I Were Being Honest
Many parents of special needs children share this poem by Emily Perl. It’s really encouraging because it gives your path a new feeling and new meaning. It just makes sense and states feelings in a way most of us cannot. We all want our life to be a trip to Italy and when we land in…